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Qualitative study of participants' perceptions and preferences regarding research dissemination.
| Content Provider | Scilit |
|---|---|
| Author | Purvis, Rachel S. Abraham, Traci H. Long, Christopher R. Stewart, M. Kathryn Warmack, T. Scott McElfish, Pearl Anna |
| Copyright Year | 2017 |
| Description | The study identifies the experiences, preferences, and perceptions of research participants regarding dissemination of research findings at the participant level and community level. The qualitative study utilized focus-group methodology to explore research participants' experiences and preferences for the dissemination of research findings. Five focus groups were held with 53 participants who were recruited through existing community advisory boards in Arkansas. Participants stated that researchers should always offer to share research findings. Participants explained that disseminating findings is appropriate because of their sense of ownership of results, it encourages participation facilitating higher quality research, and it may foster greater trust between researchers and participants. Participants also provided insights on how research findings should be shared, including recommendations for appropriate mode, timing, and context, as well as ways to share sensitive findings and the role of community partners in dissemination. This study is consistent with other studies that document participants' desire to receive research findings and expands our knowledge by documenting participants' rationale for why they think it is important and their recommendations for how to share results. Further research is needed to understand why researchers are not disseminating study findings to participants and to test the best ways to share results. |
| Related Links | http://europepmc.org/articles/pmc5789802?pdf=render https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5789802/pdf |
| Ending Page | 74 |
| Page Count | 6 |
| Starting Page | 69 |
| ISSN | 23294515 |
| e-ISSN | 23294523 |
| DOI | 10.1080/23294515.2017.1310146 |
| Journal | AJOB Empirical Bioethics |
| Issue Number | 2 |
| Volume Number | 8 |
| Language | English |
| Publisher | Informa UK Limited |
| Publisher Date | 2017-03-27 |
| Access Restriction | Open |
| Subject Keyword | Journal: Ajob Empirical Bioethics Applied Psychology Biomedical Research Human Subjects Research Professional Ethics Research Ethics Public Health |
| Content Type | Text |
| Resource Type | Article |
| Subject | Philosophy Health (social science) Health Policy |
