NDLI: “Breaking the Silence” to Improve Cancer Survivorship Care for First Nations Peoples : A Study Protocol for an Indigenous Knowledge Translation Strategy

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“Breaking the Silence” to Improve Cancer Survivorship Care for First Nations Peoples : A Study Protocol for an Indigenous Knowledge Translation Strategy

Content Provider	SAGE Publishing
Author	Gifford, Wendy Thomas, Roanne Barton, Gwen Grandpierre, Viviane Graham, Ian D.
Copyright Year	2018
Abstract	There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community in Canada and an urban hospital that delivers Cancer Care Ontario’s Aboriginal Cancer Program. Together, we will study the knowledge-to-action process to inform future KT research with Indigenous peoples for improving health-care delivery and outcomes. The study will be conducted in settings where research relations and partnerships have been established through our parent study, The National Picture Project. The inclusion of community liaisons and the continued engagement of participants from our parent study will foster inclusiveness and far-reaching messaging. Knowledge about unique cancer survivorship needs co-created with FN people in the parent study will be mobilized to improve cancer follow-up care and to enhance quality of life. Findings will be used to plan a large-scale implementation study across Canada.
Related Links	https://journals.sagepub.com/doi/pdf/10.1177/1609406918774133?download=true
ISSN	16094069
Issue Number	1
Volume Number	17
Journal	International Journal of Qualitative Methods (IJQ)
e-ISSN	16094069
DOI	10.1177/1609406918774133
Language	English
Publisher	Sage Publications CA
Publisher Date	2018-05-03
Publisher Place	Los Angeles
Access Restriction	Open
Rights Holder	© The Author(s) 2018
Subject Keyword	PAR arts-based methods community-based research participatory action research action research photovoice
Content Type	Text
Resource Type	Article
Subject	Education

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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