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A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic
| Content Provider | SAGE Publishing |
|---|---|
| Author | Hanna, Jeffrey R. Rapa, Elizabeth Dalton, Louise J. Hughes, Rosemary McGlinchey, Tamsin Bennett, Kate M. Donnellan, Warren J. Mason, Stephen R. Mayland, Catriona R. |
| Copyright Year | 2021 |
| Abstract | Meeting the needs of relatives when a family member is dying can help facilitate better psychological adjustment in their grief. However, end of life experiences for families are likely to have been deleteriously impacted by the COVID-19 crisis. Understanding how families’ needs can be met during a global pandemic will have current/future relevance for clinical practice and policy.Aim:To explore relatives’ experiences and needs when a family member was dying during the COVID-19 pandemic.Design:Interpretative qualitative study using semi-structured interviews. Data were analysed thematically.Setting/participants:A total of 19 relatives whose family member died during the COVID-19 pandemic in the United Kingdom.Results:In the absence of direct physical contact, it was important for families to have a clear understanding of their family member’s condition and declining health, stay connected with them in the final weeks/days of life and have the opportunity for a final contact before they died. Health and social care professionals were instrumental to providing these aspects of care, but faced practical challenges in achieving these. Results are presented within three themes: (1) entering into the final weeks and days of life during a pandemic, (2) navigating the final weeks of life during a pandemic and (3) the importance of ‘saying goodbye’ in a pandemic.Conclusions:Health and social care professionals can have an important role in mitigating the absence of relatives’ visits at end of life during a pandemic. Strategies include prioritising virtual connectedness and creating alternative opportunities for relatives to ‘say goodbye’. |
| Related Links | https://journals.sagepub.com/doi/pdf/10.1177/02692163211004210?download=true |
| Starting Page | 843 |
| Ending Page | 851 |
| Page Count | 9 |
| ISSN | 02692163 |
| Issue Number | 5 |
| Volume Number | 35 |
| Journal | Palliative Medicine (PMJ) |
| e-ISSN | 1477030X |
| DOI | 10.1177/02692163211004210 |
| Language | English |
| Publisher | Sage Publications UK |
| Publisher Date | 2021-03-30 |
| Publisher Place | London |
| Access Restriction | Open |
| Rights Holder | © The Author(s) 2021 |
| Subject Keyword | palliative care experience support dying End of life COVID-19 qualitative study relatives health professionals |
| Content Type | Text |
| Resource Type | Article |
| Subject | Anesthesiology and Pain Medicine |
