NDLI: The care continuum in acromegaly: how patients, nurses, and physicians can collaborate for successful treatment experiences

Content Provider	PubMed Central
Author	Plunkett, Cynthia Barkan, Ariel L.
Copyright Year	2015
Abstract	Patients with acromegaly (a condition of chronic growth hormone hypersecretion by a pituitary adenoma) often require pharmacological treatment. Somatostatin analogs (SSAs) such as pasireotide, lanreotide, and octreotide are frequently used as first-line medical therapy. As SSAs are delivered by regular subcutaneous or intramuscular injections, they can result in injection-related pain or anxiety and can be challenging to fit into patients’ lifestyles. When combined with the prolonged, debilitating psychological complications associated with acromegaly, these administration challenges can negatively impact compliance, adherence, and quality of life. Proactively managing patients’ expectations and providing appropriate, timely guidance are crucial for maximizing adherence, and ultimately, optimizing the treatment experience. As part of ongoing clinical research since 1997, our team at the University of Michigan has used SSAs to treat 30 patients with acromegaly. Based on our clinical experiences with multiple SSA administration regimens (long-acting intramuscular, long-acting deep subcutaneous, and twice-daily subcutaneous), we generated a dialog map that guides health care professionals through the many sensitive and complex patient communication issues surrounding this treatment process. Beginning with diagnosis, the dialog map includes discussion of treatment options, instruction on proper drug administration technique, and ensuring of appropriate follow-up care. At each step, we provide talking points that address the following: the patients’ clinical situation; their geographic, economic, and psychological concerns; and their inclination to communicate with clinicians. We have found that involving patients, nurses, and physicians as equal partners in the treatment process optimizes treatment initiation, adherence, and persistence in acromegaly. By encouraging collaboration across the care continuum, this dialog map can facilitate identification of the treatment plan that is most likely to yield the best possible outcome.
Related Links	http://dx.doi.org/10.2147/ppa.s84887
Ending Page	1099
Starting Page	1093
File Format	PDF
ISSN	1177889X
e-ISSN	1177889X
Journal	Patient preference and adherence
Volume Number	9
Language	English
Publisher	Dove Medical Press
Publisher Date	2015-07-01
Access Restriction	Open
Rights Holder	Dove Medical Press
Subject Keyword	Health Policy Social Sciences (miscellaneous) Medicine (miscellaneous) Pharmacology, Toxicology and Pharmaceutics (miscellaneous) Research in Higher Education
Content Type	Text
Resource Type	Article
Subject	Social Sciences Pharmacology, Toxicology and Pharmaceutics Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Quality of pharmaceutical care at the pharmacy counter: patients’ experiences versus video observation

Japanese physicians’ preferences for decision making in rheumatoid arthritis treatment

Patient-reported outcomes in type 2 diabetes mellitus: patients’ and primary care physicians’ perspectives in the Spanish health care system

Impact of patient satisfaction ratings on physicians and clinical care

How do patients with a Turkish background evaluate their medical care in Germany? An observational study in primary care

Managing treatment fatigue in patients with multiple sclerosis on long-term therapy: the role of multiple sclerosis nurses

Subcutaneous bortezomib for multiple myeloma treatment: patients’ benefits

Transition experiences and health care utilization among young adults with type 1 diabetes

Primary care for diabetes mellitus: perspective from older patients

The care continuum in acromegaly: how patients, nurses, and physicians can collaborate for successful treatment experiences

Similar Documents

Quality of pharmaceutical care at the pharmacy counter: patients’ experiences versus video observation

Japanese physicians’ preferences for decision making in rheumatoid arthritis treatment

Patient-reported outcomes in type 2 diabetes mellitus: patients’ and primary care physicians’ perspectives in the Spanish health care system

Impact of patient satisfaction ratings on physicians and clinical care

How do patients with a Turkish background evaluate their medical care in Germany? An observational study in primary care

Managing treatment fatigue in patients with multiple sclerosis on long-term therapy: the role of multiple sclerosis nurses

Subcutaneous bortezomib for multiple myeloma treatment: patients’ benefits

Transition experiences and health care utilization among young adults with type 1 diabetes

Primary care for diabetes mellitus: perspective from older patients

The care continuum in acromegaly: how patients, nurses, and physicians can collaborate for successful treatment experiences