NDLI: Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions

Content Provider	PubMed Central
Author	Kirst, Maritt Shankardass, Ketan Bomze, Sivan Aisha, Lofters Quiñonez, Carlos
Copyright Year	2013
Abstract	Monitoring inequalities in healthcare is increasingly being recognized as a key first step in providing equitable access to quality care. However, the detailed sociodemographic data that are necessary for monitoring are currently not routinely collected from patients in many jurisdictions. We undertook a mixed methods study to generate a more in-depth understanding of public opinion on the collection of patient sociodemographic information in healthcare settings for equity monitoring purposes in Ontario, Canada. The study included a provincial survey of 1,306 Ontarians, and in-depth interviews with a sample of 34 individuals. Forty percent of survey participants disagreed that it was important for information to be collected in healthcare settings for equity monitoring. While there was a high level of support for the collection of language, a relatively large proportion of survey participants felt uncomfortable disclosing household income (67%), sexual orientation (40%) and educational background (38%). Variation in perceived importance and comfort with the collection of various types of information was observed among different survey participant subgroups. Many in-depth interview participants were also unsure of the importance of the collection of sociodemographic information in healthcare settings and expressed concerns related to potential discrimination and misuse of this information. Study findings highlight that there is considerable concern regarding disclosure of such information in healthcare settings among Ontarians and a lack of awareness of its purpose that may impede future collection of such information. These issues point to the need for increased education for the public on the purpose of sociodemographic data collection as a strategy to address this problem, and the use of data collection strategies that reduce discomfort with disclosure in healthcare settings.
Related Links	http://dx.doi.org/10.1186/1475-9276-12-75
Ending Page	75
Page Count	1
Starting Page	75
File Format	PDF
ISSN	14759276
e-ISSN	14759276
Journal	International Journal for Equity in Health
Volume Number	12
Language	English
Publisher	BioMed Central
Publisher Date	2013-08-30
Access Restriction	Open
Rights Holder	BioMed Central
Subject Keyword	Research in Higher Education
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Health Policy

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions

Client/patient perceptions of achieving equity in primary health care: a mixed methods study

A study of the enablers and barriers to the collection of sociodemographic data by public health units in Ontario, Canada during the COVID-19 pandemic

Using shared goal setting to improve access and equity: a mixed methods study of the Good Goals intervention in children’s occupational therapy

Examining the sustainment of the Adolescent-Community Reinforcement Approach in community addiction treatment settings: protocol for a longitudinal mixed method study

Expert recommendations for implementing change (ERIC): protocol for a mixed methods study

Validating a conceptual model for an inter-professional approach to shared decision making: a mixed methods study

Sociodemographic and psychosocial risk factors of railway suicide: a mixed-methods study combining data of all suicide decedents in the Netherlands with data from a psychosocial autopsy study

The stages of implementation completion for evidence-based practice: protocol for a mixed methods study

Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions

Similar Documents

Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions

Client/patient perceptions of achieving equity in primary health care: a mixed methods study

A study of the enablers and barriers to the collection of sociodemographic data by public health units in Ontario, Canada during the COVID-19 pandemic

Using shared goal setting to improve access and equity: a mixed methods study of the Good Goals intervention in children’s occupational therapy

Examining the sustainment of the Adolescent-Community Reinforcement Approach in community addiction treatment settings: protocol for a longitudinal mixed method study

Expert recommendations for implementing change (ERIC): protocol for a mixed methods study

Validating a conceptual model for an inter-professional approach to shared decision making: a mixed methods study

Sociodemographic and psychosocial risk factors of railway suicide: a mixed-methods study combining data of all suicide decedents in the Netherlands with data from a psychosocial autopsy study

The stages of implementation completion for evidence-based practice: protocol for a mixed methods study

Sociodemographic data collection for health equity measurement: a mixed methods study examining public opinions