NDLI: An Integrative Review Exploring Psycho-Social Impacts and Therapeutic Interventions for Parent Caregivers of Young People Living with Duchenne's Muscular Dystrophy

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An Integrative Review Exploring Psycho-Social Impacts and Therapeutic Interventions for Parent Caregivers of Young People Living with Duchenne's Muscular Dystrophy

Content Provider	MDPI
Author	Porteous, Debra Davies, Barbara English, Christine Atkinson, Joanne
Copyright Year	2021
Description	The purpose of this integrative review was to explore psycho-social impacts and therapeutic interventions for parent caregivers of young people living with Duchenne’s Muscular Dystrophy (DMD). Electronic databases were searched for research publications between 2010 and 2020. This included Medline, CINAHL, PsycINFO, ERIC, ERC, and AMED. Four central themes emerged: Living with DMD; Knowing and telling; Transitioning; and Building resilience. The impact on parents caring for a child with DMD affected all aspects of their lives, changed over time, and had identifiable peak stress points. Unmet parental information and support needs left parents struggling in their role. Transition required changes to parenting behaviors and required adaptation and resilience. It is proposed that future investment should focus on anticipating family need, targeting intervention cognizant of predictable stress points and building resilience through social community. Parents may then be better positioned to support their child in looking forward.
Starting Page	212
e-ISSN	22279067
DOI	10.3390/children8030212
Journal	Children
Issue Number	3
Volume Number	8
Language	English
Publisher	MDPI
Publisher Date	2021-03-11
Access Restriction	Open
Subject Keyword	Children Family Studies Psycho-social Needs Muscular Dystrophy Duchenne's Muscular Dystrophy Parents Caregivers Age 13–19 Family Burden/care Burden
Content Type	Text
Resource Type	Article

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