NDLI: Patient-Administered Access Control: A Usability Study

Content Provider	IEEE Xplore Digital Library
Author	Rstad, L. Alsos, O.A.
Copyright Year	2009
Abstract	Patient-Controlled Health Records (PCHRs) allow patients complete control over their health information. They decide who to share their information with, which makes the patient the administrator of access control. While PCHRs have a great potential for patient empowerment, they have an equally great risk for breach of privacy if consequences of sharing are not completely clear to the patient. This paper presents results from a usability evaluation study that compares three different visual interfaces for sharing in a PCHR. The goal of this study was to investigate how users understand and react to the concept of sharing. The study found that when given the opportunity to do so the users wanted to exercise detailed control. The study also indicated that defined templates for sharing in a PCHR has a lot of authority as users assume them to be created by experts and therefore "correct".
Starting Page	877
Ending Page	881
File Size	308320
Page Count	5
File Format	PDF
ISBN	9781424435722
DOI	10.1109/ARES.2009.134
Language	English
Publisher	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Publisher Date	2009-03-16
Publisher Place	Japan
Access Restriction	Subscribed
Rights Holder	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Subject Keyword	Access control Availability Privacy Information science Information security Medical services Permission Clinical diagnosis Usability Computer security
Content Type	Text
Resource Type	Article

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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