NDLI: What Do You Want to Know? Investigating the Information Requirements of Patient Supporters

Content Provider	IEEE Xplore Digital Library
Author	Moncur, W. Masthoff, J. Reiter, E.
Copyright Year	2008
Description	Author affiliation: Sch. of Comput., Univ. of Aberdeen, Aberdeen (Moncur, W.; Masthoff, J.; Reiter, E.)
Abstract	There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we discovered that most lay users want only a very high-level summary of the baby's state. What lay users do want is information about how the parents are coping, and what support they need. Findings were cross-validated through a questionnaire.
Starting Page	443
Ending Page	448
File Size	461684
Page Count	6
File Format	PDF
ISBN	9780769531656
ISSN	10637125
DOI	10.1109/CBMS.2008.36
Language	English
Publisher	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Publisher Date	2008-06-17
Publisher Place	Finland
Access Restriction	Subscribed
Rights Holder	Institute of Electrical and Electronics Engineers, Inc. (IEEE)
Subject Keyword	Pediatrics Biomedical monitoring Heart rate Knowledge acquisition Weather forecasting Medical tests Heart rate measurement Laboratories Terminology Concrete neonatal intensive care Social networks health informatics Grounded Theory knowledge acquisition personalisation
Content Type	Text
Resource Type	Article
Subject	Radiology, Nuclear Medicine and Imaging Computer Science Applications

Sl.	Authority	Responsibilities	Communication Details
1	Ministry of Education (GoI), Department of Higher Education	Sanctioning Authority	https://www.education.gov.in/ict-initiatives
2	Indian Institute of Technology Kharagpur	Host Institute of the Project: The host institute of the project is responsible for providing infrastructure support and hosting the project	https://www.iitkgp.ac.in
3	National Digital Library of India Office, Indian Institute of Technology Kharagpur	The administrative and infrastructural headquarters of the project	Dr. B. Sutradhar bsutra@ndl.gov.in
4	Project PI / Joint PI	Principal Investigator and Joint Principal Investigators of the project	Dr. B. Sutradhar bsutra@ndl.gov.in Prof. Saswat Chakrabarti will be added soon
5	Website/Portal (Helpdesk)	Queries regarding NDLI and its services	support@ndl.gov.in
6	Contents and Copyright Issues	Queries related to content curation and copyright issues	content@ndl.gov.in
7	National Digital Library of India Club (NDLI Club)	Queries related to NDLI Club formation, support, user awareness program, seminar/symposium, collaboration, social media, promotion, and outreach	clubsupport@ndl.gov.in
8	Digital Preservation Centre (DPC)	Assistance with digitizing and archiving copyright-free printed books	dpc@ndl.gov.in
9	IDR Setup or Support	Queries related to establishment and support of Institutional Digital Repository (IDR) and IDR workshops	idr@ndl.gov.in

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