NDLI: Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care.

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Neurofibromatosis Type 1 (NF1): Addressing the Transition from Pediatric to Adult Care.

Content Provider	Europe PMC
Author	Radtke, Heather B Berger, Angela Skelton, Tammi Goetsch Weisman, Allison
Copyright Year	2023
Abstract	AbstractHealth care transition, or HCT, is the process of adolescents and young adults moving from a child/family-centered model of health care to an adult/patient-centered model of health care. Healthcare providers have an essential role in this process which can be especially challenging for individuals with medical or special healthcare needs. Neurofibromatosis type 1 (NF1) is a complex multisystem disorder requiring lifelong medical surveillance, education, and psychosocial support. This review highlights the transition needs of NF1 patients and provides resources for both clinicians and families to facilitate HCT in this population. The authors propose a framework for the development of an effective NF1 transition program by using the Six Core Elements model of the Got Transition program, reviewing existing literature, and incorporating author experiences in the care and transition of NF1 patients.
Related Links	https://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC9925753&blobtype=pdf
Page Count	14
Journal	Pediatric Health, Medicine and Therapeutics [Pediatric Health Med Ther]
Volume Number	14
PubMed Central reference number	PMC9925753
PubMed reference number	36798587
e-ISSN	11799927
DOI	10.2147/phmt.s362679
Language	English
Publisher	Dove
Publisher Date	2023-02-09
Access Restriction	Open
Rights License	This work is published and licensed by Dove Medical Press Limited. The full terms of this license are available at https://www.dovepress.com/terms.php and incorporate the Creative Commons Attribution – Non Commercial (unported, v3.0) License (http://creativecommons.org/licenses/by-nc/3.0/). By accessing the work you hereby accept the Terms. Non-commercial uses of the work are permitted without any further permission from Dove Medical Press Limited, provided the work is properly attributed. For permission for commercial use of this work, please see paragraphs 4.2 and 5 of our Terms (https://www.dovepress.com/terms.php). © 2023 Radtke et al.
Subject Keyword	adolescents young adults neurofibromatosis transition healthcare
Content Type	Text
Resource Type	Article
Subject	Pediatrics, Perinatology and Child Health

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