Attitudes of Filipino parents of children with Down syndrome on noninvasive prenatal testing.

Content Provider	Europe PMC
Author	de Castro-Hamoy, Leniza G. Tumulak, Ma-am Joy R. Cagayan, Maria Stephanie Fay S. Sy, Peter A. Mira, Nona Rachel C. Laurino, Mercy Y.
Abstract	Globally, there has been an increasing uptake of noninvasive prenatal testing (NIPT). In the Philippines, the test is currently available through private laboratories and can be availed by families who can afford the out-of-pocket cost. In a country where elective termination of pregnancy is not an option, the question arises as to the relevance of this testing, even among health professionals. This is an exploratory qualitative study that explored the attitudes of Filipino parents of children with Down syndrome (DS) toward NIPT using thematic analysis of in-depth interviews. Study participants acknowledged the value of NIPT in providing early diagnosis and, subsequently, emotional, mental, spiritual, and financial preparation. This said, they also emphasized that such early detection may cause anxiety and even thoughts of termination for some, despite abortion being against the law and predominant religious beliefs. For those undergoing NIPT and receiving positive results, study participants highlighted the need to receive proper and nonbiased counseling from both health professionals and parents who have children with DS. Supplementary Information The online version contains supplementary material available at 10.1007/s12687-022-00597-w.
Related Links	https://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC9161766&blobtype=pdf
ISSN	1868310X
Volume Number	13
DOI	10.1007/s12687-022-00597-w
PubMed Central reference number	PMC9161766
Issue Number	4
PubMed reference number	35653002
Journal	Journal of Community Genetics [J Community Genet]
e-ISSN	18686001
Language	English
Publisher	Springer Berlin Heidelberg
Publisher Date	2022-06-02
Publisher Place	Berlin/Heidelberg
Access Restriction	Open
Rights License	© The Author(s), under exclusive licence to Springer-Verlag GmbH Germany, part of Springer Nature 2022
Subject Keyword	Down syndrome Noninvasive prenatal testing Parents Qualitative Phenomenology
Content Type	Text
Resource Type	Article
Subject	Public Health, Environmental and Occupational Health Epidemiology Genetics (clinical)