Perceptions of Social Media Use to Augment Health Care Among Adolescents and Young Adults With Cystic Fibrosis: Survey Study.

Content Provider	Europe PMC
Author	Perkins, Ryan C Gross, Rachel Regan, Kayla Bishay, Lara Sawicki, Gregory S
Editor	Badawy, MD, MS, Sherif
Copyright Year	2021
Abstract	BackgroundFor individuals with cystic fibrosis (CF), adolescence and young adulthood are times of significant vulnerability and have been associated with clinical and psychosocial challenges. Social media may offer innovative care delivery solutions to address these challenges.ObjectiveThis study explored motivations and attitudes regarding current social media use and preferences for a social media platform in a sample of adolescents and young adults (AYA) with CF.MethodsA cross-sectional survey was administered to 50 AYA with CF followed at a large pediatric-adult CF center. The survey included questions regarding social media platform utilization, attitudes toward general and CF-specific online activities, and preferences for a CF-specific care delivery platform.ResultsYouTube, Snapchat, and Instagram were the most commonly used social media platforms. AYA with CF do not report routinely using social media for health-related information acquisition, social support, or help with adherence. However, their perceptions of social media utilization and preferences for platform development suggest interest in doing so in the future.ConclusionsAYA with CF use social media and expressed interest in the development of a social media platform. Platform development will allow for gaps in health care delivery to be addressed by improving social support and adherence while augmenting current methods of health information acquisition.
Related Links	https://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC8406102&blobtype=pdf
Journal	JMIR Pediatrics and Parenting [JMIR Pediatr Parent]
Volume Number	4
DOI	10.2196/25014
PubMed Central reference number	PMC8406102
Issue Number	3
PubMed reference number	34232121
e-ISSN	25616722
Language	English
Publisher	JMIR Publications
Publisher Date	2021-08-16
Publisher Place	Toronto, Canada
Access Restriction	Open
Rights License	This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Pediatrics and Parenting, is properly cited. The complete bibliographic information, a link to the original publication on https://pediatrics.jmir.org, as well as this copyright and license information must be included. ©Ryan C Perkins, Rachel Gross, Kayla Regan, Lara Bishay, Gregory S Sawicki. Originally published in JMIR Pediatrics and Parenting (https://pediatrics.jmir.org), 16.08.2021.
Subject Keyword	cystic fibrosis social media mobile health adherence adolescents young adults
Content Type	Text
Resource Type	Article
Subject	Health Informatics Pediatrics, Perinatology and Child Health Biomedical Engineering