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The routine collection of patient-reported outcome measures (PROMs) for long-term conditions in primary care: a cohort survey.
| Content Provider | Europe PMC |
|---|---|
| Author | Peters, Michele Crocker, Helen Jenkinson, Crispin Doll, Helen Fitzpatrick, Ray |
| Copyright Year | 2014 |
| Abstract | ObjectivesTo evaluate the feasibility of using patient-reported outcome measures (PROMs) for long-term conditions (LTCs) in primary care.DesignA cohort postal survey conducted from September 2010 to April 2012.SettingPrimary care practices (n=33) in London and the North-West of England.Participants4484 patients with a diagnosis of asthma, chronic obstructive pulmonary disease, diabetes, epilepsy, heart failure or stroke were sent a survey at baseline.Main outcomeThe main outcome was to evaluate the feasibility of and the recruitment strategies for collecting PROMs data in LTCs by assessing the response rates for the baseline and follow-up surveys. Secondary outcomes were the evaluation of change scores of the EQ-5D index and visual analogue scale (VAS) between baseline and follow-up surveys.ResultsThe baseline survey achieved a response rate of 38.4% (n=1721/4485) and at follow-up 71.5% (n=1136/1589). Response rates varied by LTC. Little change was found in health-related quality of life for the total sample (−0.001 for the EQ-5D index score and 0.12 for the EQ-5D VAS) between patients responding to both the baseline and follow-up surveys.ConclusionsThe response rate to the baseline survey was similar to that of other general practice surveys. Current UK policy aims to assess health service performance in LTCs by means of using PROMs. It thus would be desirable to improve response rates by making the invitation to self-reports of health-related quality of life more engaging for patients. Results on the EQ-5D score raise questions about optimal indicators for LTCs and appropriate timelines for assessment. |
| Journal | BMJ Open |
| Volume Number | 4 |
| PubMed Central reference number | PMC3931992 |
| Issue Number | 2 |
| PubMed reference number | 24561495 |
| e-ISSN | 20446055 |
| DOI | 10.1136/bmjopen-2013-003968 |
| Language | English |
| Publisher | BMJ Publishing Group |
| Publisher Date | 2014-02-21 |
| Publisher Place | London |
| Access Restriction | Open |
| Rights License | This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/ Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions |
| Subject Keyword | Patient-reported outcome measures Long-term conditions PRIMARY CARE Cohort study |
| Content Type | Text |
| Resource Type | Article |
| Subject | Medicine |
